Diagnosis finally

I heard from the Dr. after reading the MRI here is what he said. Sawyer is suffering from Neurocutaneous Melanosis when symptomatic or otherwise manifests neurologically, it carries a poor prognosis even in the absence of malignancy. Sawyer has multiple lesions that are deep seated within his brain. There is NO validation of malignancy. The problem with this disease is that you just don't know. The lesions can grow and cause neurological issues, which is where the seizures are coming from. Dr. Krueger will read the MRI to determine if there is any possibility of removal, however this is not often the case unless there are major changes in symptoms.

Forgive me if I have spotty info, I don't know a lot about the illness as it is considered a RARE disease. I have joined the Nevus Outreach and there are folks there that have children with this disease who I can network with.