Wednesday, November 28, 2007

Diagnosis finally

I heard from the Dr. after reading the MRI here is what he said. Sawyer is suffering from Neurocutaneous Melanosis when symptomatic or otherwise manifests neurologically, it carries a poor prognosis even in the absence of malignancy. Sawyer has multiple lesions that are deep seated within his brain. There is NO validation of malignancy. The problem with this disease is that you just don't know. The lesions can grow and cause neurological issues, which is where the seizures are coming from. Dr. Krueger will read the MRI to determine if there is any possibility of removal, however this is not often the case unless there are major changes in symptoms.

Forgive me if I have spotty info, I don't know a lot about the illness as it is considered a RARE disease. I have joined the Nevus Outreach and there are folks there that have children with this disease who I can network with.

Monday, November 19, 2007

Sawyer is in hospital...

Sawyer has been having some seizures recently and was just admitted to the hospital for them. He will be having an MRI on the 22nd to determine if he does in fact have NCM, let's pray he does not! His condition was far worse than was known before his adoption. We know very little at this time but would like you to also hima and my other children in your Thanksgiving prayers as they go through these difficult times

Tuesday, November 13, 2007

Check out the family picture...


We went out to eat at Brio and had a great time. The kids loved spending time with Papa Dick, Nana Suzie and Nana Diane. Sarah also got to see Brutus...hehe!

Saturday, November 03, 2007

I love cookies!!! COOKIES!!


Sawyer has this fascination with nilla waffers...don't we all! Wait until I add the banana pudding! He is starting to show signs of coming out of his little shell every day. We just absolutely love him!