Just an update

Nothing huge on Sawyer he is on Depakote sprinkles which seem to be
controlling his seizures for now. He still seems to have some small
seizures but I'm okay with the little ones after the big one! I was
going to respond to the email chain on the wonderful comments we
get...I was in the emergency room with him on Friday night because he
had a terrible fever that I could not keep down, it was 104.3 and I
was worried it would spawn a seizure. There was an older gentleman
that stopped, stared and then said "I sure hope that's not
contageous!"...sheesh. I sat there a second and responded with, "I was
thinking the same thing about your ignorance!". Some of the folks in
the place looked at me and smiled or winked. hehe!

We have another appt with Sawyer's Doctor in a week to review if we
will remove any of his questionable nevi. They halted due to his
seizures, but now I'm wondering with his prognosis if it is even worth
it to put him through it...we'll continue to pray and hope that God
will help us answer that question. How sleepy can playing with a string make you????

Merry Christmas

Well, although tired it was a great day for us all. Sophie's first US Christmas and she had a blast. Sawyer was very tired and uninterested, but I thank you all for the nice gifts for him! Sarah loved her webkins...thank you Kelly's! Samuel about passed out from the Ipod...thank you Wanderleigh's! and Naomi and Hedda...thank you so much for all making this such a wonderful Christmas!

We're back at Children's

Well, I'm back at Children's, spent the night here. He had a seizure
that lasted an hour and 10 or 15 minutes. This is freaking me
out...sheesh. I think my children were more calm than I was. My 7 yr
old called 911 after the rectal diastat didn't work, she said "my baby
brother is having a seizure" and then hung up. Well they of course
called back and my 9 yr old son picked up the phone...he paused as if
to listen and then said..."Nope, you can't talk to her, she's freaking
out, what do you need." Isn't he funny. I immediately felt like "you
had better get your act together!".

He is getting poked and prodded today, not a happy day, he is pretty
sedated for now. I'll update when I know what they are going to do.

Shelli

Cinci Children's Bldg A, Floor 7 room 43